So much has happened in the many months since I’ve been here. Too much, really. My family and I have faced so much upheaval that we’re just now beginning to settle into our new normal. That has taken eight, long months and it’s a tentative settling at best. Let me back up and explain.
Eight months ago our definition of normal imploded. All within one week’s time we found out that a close relative was diagnosed with breast cancer, my husband was diagnosed with diabetes, and I had pernicious anemia (PA) and possibly multiple sclerosis (MS). It’s been an arduous journey to health and we aren’t even at the end. Jim has stabilized with changes to his diet. Our relative is (all fingers crossed) in the last leg of kicking cancer square in the ass. Me? Still in limbo, I’m afraid. I can control the PA with bi-monthly shots, but the other symptoms…not quite.
It all began because I couldn’t walk without falling. The fall that sent me to the doctor frightened me. I was coming down the stairs after my morning shower and I toppled and hit the wall hard, literally and figuratively. I can no longer walk unassisted. I use a cane to navigate stairs and a rollator for all other ambulatory needs. I can drive only short distances, and then only if I absolutely have to. There are days I can’t drive at all because I can’t trust my feet or hands to do as I command. And that’s just the tip of the iceberg for me. There are so many other physical changes in my life that I won’t go into here. It all boils down to one thing: I have to accept that I am handicapped now.
And that’s not something I am doing well with. I have always been fiercely independent. Asking for help was not an option I ever employed. If I wanted to go somewhere or do something I just did. Nothing stood in my way. And if I couldn’t do it, well, it just didn’t get done.
But here I am. Needing help every damn day of my life because you can’t just not wear pants because you can’t put them on yourself. You can’t just leave the house without shoes because your foot won’t lift off the floor. You can’t just not eat because walking across the room isn’t an option for the day.
And I hate it. I resent it. I cannot stand it!
The worst part? I am eight months into poking and prodding and testing and multiple doctors and I STILL do not have an official diagnosis. Ask how many Type A people would enjoy that. If you find one, please introduce us. I need help.
All this to say, I am grieving the loss of my independence something fierce. It truly feels like some part of me just up and died. Last August I was walking, driving, and living my life like every other person–going to my nieces’ dance recitals and soccer games, going to the grocery store, taking my kids back and forth to events, going to have lunch with my husband at work. Four weeks later I just wasn’t anymore. Two weeks after that, I was using a rollator once in a while. Eight months later, and the rollator is a part of my body. The fear that a wheelchair looms in my near future is so very real that I want to cry.
Don’t get me wrong. I know things could be exponentially worse. I’m still here, alive and watching my kids transition into the next big phase of their lives, watching my nieces grow, and reconnecting with long lost family. The recent loss of a friend who was only 12 days younger than me drove that realization home hard. I sat at his memorial last week, weeping for the loss, aching at his mother’s face, his widow’s sobs, and I knew I was being selfish. Talk about forcing some perspective.
However, it’s still a loss I am feeling and grieving. I know, at some point, I will rise above this. I will learn how to navigate this massive change. Until then, I am trying to remind myself that this is not the end of the world. It’s just a hefty bump in my road–a road that I am travelling, like it or not.
For now, I’ve chosen to focus on what I CAN do. It’s the only thing I think will help. I’ve decided to kick my writing goals into high gear while I still can. I’m going to be sharing here about navigating the traditional publishing slopes. I am querying agents for my first novel. I am working steadily on my next novel. I am blogging again. Most of all, I have to remember that I am more than just my rebellious body.
I’m still a wife.
I’m still me.